Quick Post

Jett's been back in the hospital since Friday. He began feeling poor on Wednesday and then developed a low grade fever so we brought him in for evaluation. Somehow the poor baby has RSV again and also has c-dif. He feels terrible and is in pain. We are managing and getting along well this hospitalization. I just dropped Jace at my moms and am on my way to to relieve Pj so he can go to work. Tag team parenting!!!

Friday was supposed to be the surgery to re-connect the boy. I am uncertain at this point if the surgeons will proceed...I would be surprised and I am reluctant to them do it anyhow!

Sweet pictures of the boys. Good to be home but not without trials. This is Nana filling in for Liz, PJ,Jace and Jett. Pj is busy trying to get in as many hours at work and still be available for Jett, Jace and Liz. Jett is struggling with taking his oral medications and is having upset stomach problems. Liz is concerned he is not getting enough of the medications in his system to do much good.

Liz, Jace and Jett got to go to Pop's house Friday night for Pop's birthday. PJ had to work. Uncle Nick and Aunt Vicky came too and spent lots of time with Jace. A good time was had by all!

Plans are still to reconnect Jett at the end of this month! Keep praying for Jett and the rest of the family! As you can see by Jett's photo, he is a joyful child! Big brother Jace calls Jett "Big Boy" and is very happy to have Jett home from the hospital.

Home Again

We were able to bring Jett home on Wednesday evening. He is a much happier boy these days! Hopefully we can keep him healthy until his next scheduled surgery on July 31st. The surgeon will be re-attaching his intestines and placing a G-tube which will allow us to put him on a pump that will feed him all night long.

Having him home is great but a lot of work. In addition to all of the meds he was on previously, they have added 2 more that are given every 6 hours. He is a full time job plus!

I have taken a few pics lately and will post them as soon as I find the camera's charger! Ha!

Liz

Monday

Jett remains in the hospital. He seems to be doing a bit better although at times is uncomfortable. The doctors also found he has a staph infection in his lungs which he is being treated for as well. This hospitalization is more exhausting physically than the NICU. One of us stays with Jett at all times and sleep gets very interupted between the alarms, whistles and nebulizer treaments all night long. Pj and I tag team although he is working in the evenings which only makes things more complicated. We are lucky we have both sets of Grandparents nearby to keep Jace happy. We are hoping to be able to bring Jett home by mid to late week. Surgery will be down the road a few weeks so we will be back here soon.

Back in the hospital...........

So Jett continued to be very uncomfortable after we had him checked out in the emergency department. I brought him back oTuesday and told the ER doctor I wasn't bringing him home b/c there was something defintiley wrong.

He was admitted and they began running many tests. Come to find out he has "C-diff" a stomach bug that is extremely uncomfortable. They have started him on some meds and it will be a few more days before he starts getting some relief. During our stay he has already required some assistance with breathing again. This time I was in the room when he turned blue and wasn't able to move any air in his lungs. It seemed again that mucus got stuck in his lungs or windpipe. This event of course upgraded us to the "Special Care Unit". He continues to be assisted with some oxygen, mostly for when he is in pain and crying. They are limited on pain meds to use on Jett because a lot of them can cause constipation...the last thing we need is another blockage.

We were supposed to meet with the surgeon this week and discuss putting him back together but that is all on hold until he beats this latest bug. I am not sure how long we will be here, depends on how he responds to the medicines. C diff can be difficult to get rid of, its considered one of the "superbugs" that can be resistant to treatment.

Sunday

Our 4th of July was spent in the children's ER. For about 4 or 5 days Jett has been having "episodes" lasting up tp 2 1/2 hours of unconsolable crying. It seemed like his belly was really hurting him. So, the Gi doctor told me to bring him in and make sure everything is ok. He was seen immediately and they began running tests. Everything came back ok so we do not know the cause of his distress.
Monday he will go back for an enema study and also be seen by the pulmonolgist again and then Wednesday the surgeon.