Wow does time fly....I cannot believe we are in October already. I wish I knew where the last 6 months went.
It has been a very long time since I updated the blog but actually not much has been happening. We are slowly going up on Jett's feeds during the day. He has absolutely no interest in taking anything by mouth so we give him everything through his g-tube. He contimues to battle lung infections and has a cough that is lingering. I believe his c-diff, the belly infection, has finally gone away. He has been much more pleasant lately although he does have bad days.
We are hoping to get some relief in the near future, the insurance company has ok'ed us to have a private nurse a few times a week. This should allow me to get out of the house and back into the office a bit. We still go nowhere with Jett because of all the germs going around. BAck and forth from my parents' is about the extent of it so as you can imagine, I'm looking forward to a little socializing.
Pj and I did get out and go to Halloween Horror Nights last week which was a blast. We also got a nursing sitter for Jett so that Pj and I could take Jace to the movies. I ended up curling up on the seat and totally passing out. Pj ended up leaving because the movie was 3D and he got a horrible headache. And that was our family outting...pretty pathetic but we are not giving up!
The plan is to continue to increase Jett's feeds until we can get him off the IV nutrients. We still have a long way to go but are making progress. Developmentally he is doing pretty well considering all he has been through. He can sit up in a bumbo by himself now and is working real hard at rolling over. He also gets his legs up under him when he's on his belly. He laughs and babbles a lot, especially st his big bro who can get a smile from him at anytime!
I have not been able to send THANK YOU cards for everything people have sent and done for me and my family. I am so grateful though and appreciate every prayer, dinner, gift card, present, words of encouragement and can you believe we even had ladies from the church come out and do my yard work??? Thank you from the bottom of my heart for everything!!!
Liz
It has been a very long time since I updated the blog but actually not much has been happening. We are slowly going up on Jett's feeds during the day. He has absolutely no interest in taking anything by mouth so we give him everything through his g-tube. He contimues to battle lung infections and has a cough that is lingering. I believe his c-diff, the belly infection, has finally gone away. He has been much more pleasant lately although he does have bad days.
We are hoping to get some relief in the near future, the insurance company has ok'ed us to have a private nurse a few times a week. This should allow me to get out of the house and back into the office a bit. We still go nowhere with Jett because of all the germs going around. BAck and forth from my parents' is about the extent of it so as you can imagine, I'm looking forward to a little socializing.
Pj and I did get out and go to Halloween Horror Nights last week which was a blast. We also got a nursing sitter for Jett so that Pj and I could take Jace to the movies. I ended up curling up on the seat and totally passing out. Pj ended up leaving because the movie was 3D and he got a horrible headache. And that was our family outting...pretty pathetic but we are not giving up!
The plan is to continue to increase Jett's feeds until we can get him off the IV nutrients. We still have a long way to go but are making progress. Developmentally he is doing pretty well considering all he has been through. He can sit up in a bumbo by himself now and is working real hard at rolling over. He also gets his legs up under him when he's on his belly. He laughs and babbles a lot, especially st his big bro who can get a smile from him at anytime!
I have not been able to send THANK YOU cards for everything people have sent and done for me and my family. I am so grateful though and appreciate every prayer, dinner, gift card, present, words of encouragement and can you believe we even had ladies from the church come out and do my yard work??? Thank you from the bottom of my heart for everything!!!
Liz
