A new place to call home.....

Where do I begin? It's been a while so this is a long one....

So the rest of last week went well for Jett. His breathing has improved and he is doing all of the normal behaviors of a 2 1/2 month old. He gave me the cutest smile last week which just made all of this nonsense go away for a few moments! He also began nursing once a day again, which I mentioned before makes me smile from ear to ear...I love our time together.

Sunday the catheter to his central line broke so he headed back to surgery on Monday to replace the Broviak line which gives him all of his nutrition. The surgery went fine and he was back to normal quickly.

Yesterday he was moved from Winnie Palmer Hospital, a Mother and Baby Hospital to the hospital next door, Arnold Palmer Hospital. APH is solely for pediatric patients. The team at Winnie Palmer felt like Jett and our family would thrive at APH. He now has a very large private room with it's own bathroom , tv, etc. We are not limited to the amount of visitors we can have in the room which is great when the grandparents are there. The NICU had us sharing a very small room and we could only have a total of 2 people at the bedside and one had to be me or PJ.

From the "family" perspective the move is great. Jace can watch movies, play on a computer, there is a great big Pirate Ship downstairs to play on. There is also a "family room" on the floor that has a huge TV and kitchen. The accomodations are wonderful however we are so nervous b/c now we have all new nurses and staff caring for Jett. We really loved and trusted the NICU staff and getting to know everyone all over is a bit scary. Plus we loved having my friend Erica as his nurse. She was a mess when she transferred him over...she really loves the little guy! That security was so nice, we never had to worry and could get a good night sleep when she was there. The doctors are pretty much the same, the neonatologist no longer follows Jett but the same team of specialists will. Jace loved his brother's new room. We brought some toys and books to read to the baby. Jace loved reading with Jett today and teaching him all of the different animals in the book...it was adorable.

Jett had a bit of poop in his diaper which may mean the blockage has moved. They are putting dye in his fistula tonight to see if anything comes through. It would be great to be able to start conditioning the lower bowel, preparing it for surgery. Right now the plan is to have surgery the second week of July to try and re-attach the intestines. Once the surgeyr is complete and healing begins, we may have a better idea of his long term prognosis. At this point, his lungs are doing well. He receives preventive nebulizer treatments and chest PT several times a day.

I promise to be better with my updates. Luckily there is a computer for family use right there on Jett's floor so it should be a bit easier to find time :)

Thanks for all the love and support!

Liz